Brain Injury Advocates, The Book


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Brain Injury Advocates, the book


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This is a book about the lives, struggles, issues, priorities, and rights of people with acquired (including traumatic) brain injuries. If you want to learn about what it is like for people in our brain injury community, if you want to understand the challenges that we face, or if you want to see issues from our point of view, this is the book for you.

Brain Injury

Brain injury is a significant topic in society. On this earth there are vast numbers of human beings with acquired brain injuries (ABI's) from trauma (as in traumatic brain injury), anoxic or hypoxic injury, aneurysm, illness, stroke, toxin or tumor. There are millions upon millions of us. Issues We individuals with brain injuries have many unheralded issues. Medical research and patient care in hospitals dominate the discussion. However, we have numerous additional challenges which need to be addressed. Many of these concerns see the light of day in this book. Basic human needs, access to local services, interaction with society, privacy concerns, and confusion in our community regarding brain injury terminology are among the issues discussed.

Survivor Advocacy

The book also showcases a particular group of brain injury survivors who have chosen to be independent brain injury survivor advocates for our community. They work collectively on a brain injury survivor community agenda at the Brain Injury Network all-survivor-advocacy nonprofit organization. This book also elaborates on additional individuals with brain injuries who have become brain injury survivor leaders and spokespeople. There are many survivor leaders in our community. Numerous individuals with brain injuries have made contributions over the years, and it is time to acknowledge them. The author attempts to do that in the book by highlighting a cross-section of the individuals who are making a difference in and for our community. Dozens of individuals are mentioned. And further, the book delineates our human rights and gives many examples of human rights issues that specifically pertain to our community. There is material explaining how we live, how we are diagnosed, how we look for services, how we are stigmatized, and how we are victimized. In spite of great odds, the book also makes clear that often individuals in our community prevail, and what is more, we stand up to help other.

The Author

Ms. Hultberg had her own TBI in 1985. In Brain Injury Advocates she manages with difficulty to talk about her own TBI ordeal. She has lived post-TBI for 30 years now. She didn't quite have an MTBI (mild traumatic brain injury), nor did she have a severe TBI. Her injury fell somewhere in the middle. (Some call that a moderate TBI.) She discusses the accommodations she made in life. For example, she describes how she modified her lifestyle and living environment so that she could go on in spite of some TBI-engendered limitations. Her ultimate outcome was that she was eventually able to reengage in society. She hopes she was even able to make a bit of a difference in this world for others with acquired (which includes traumatic) brain injuries. Read the book and make up your own mind.


To contact the author please write to Sue Hultberg, PO Box 9073, Santa Rosa, California, USA, 95405 or email her at sabisue@prodigy (dot) net.